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Introducing our new PSA video
In partnership with the Sickle Cell Disease Association of America (SCDAA), this public service announcement (PSA) aims to provoke a real discussion, spark ideas, and offer support to the sickle cell disease (SCD) community, while raising public awareness.
WATCH NOWThese are some of the most inspiring people in the sickle cell community. We interviewed them to create Transition TBH — a video series where they share their stories and tips for transition.
WATCH THE SERIES NOWThe transition from pediatric care to adult care can often be overwhelming. But it doesn’t have to be. With a little preparation, you’re going to ace it like a pro. And we’ll help you do that. We’ve put together a collection of handpicked tools and resources here in this website so you know where to go every time you have a question about transition. While you may use this site for resources, you must continue to consult your doctor for medical or treatment questions.
ABOUT USU.S. Perspectives in Transition from Pediatric to Adult Care
DOWNLOAD PDFGrant proposals were selected for funding after judicious review in collaboration with a group of hematologists and patient representatives with expertise in the field of transition.
SEE RECIPIENTS
Check out some samples from gottransition.org to see how ready you are for the transition from pediatric to adult SCD care.
VISIT NOW
Read or download a comprehensive guide to SCD that includes vital disease information, transition tips, templates, and trackers.
VISIT NOWTransition TBH is a series of videos where SCD patients, doctors and social workers share their stories and tips for transition. We’ve handpicked our guests to make sure that you get something valuable out of this series.
Dr. Nirmish Shah, the Director of the SCD Transition Program at Duke University, talks about the importance of transition and shares his expert tips to ace it.
