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We’re Forma Therapeutics, a Novo Nordisk company focused on the research, development, and commercialization of novel therapeutics to transform the lives of patients with rare diseases. In addition, we also support the work being done in the larger community. Offering funding opportunities is part of our commitment to building the future we want to see—one where everyone has access to inclusive, empathetic, and transformative care.
The formabridge program is one such opportunity. Through formabridge grants, Forma committed $1M in funding in 2022 for promising and innovative initiatives that address unmet needs for young people with sickle cell disease in the transition from pediatric to adult care.
Funding is being provided to patient and community groups, researchers, healthcare institutions, and professional associations based on specific, predetermined criteria. The formabridge application period ended for 2022. You can find the recipients on our Grants Program page.
Young adulthood is one of the most exciting phases of life. A time when you are full of wonder and hope. But for most teens living with sickle cell disease (SCD), it is a time of despair and frustration because the simple joys of growing up are upstaged by the uncertainties of transitioning from pediatric to adult care. That’s why we created this website, to help bridge the gap.
Learning how to advocate for yourself while you navigate the transition process will not happen overnight. But if you put in the work, it will happen—we’re here to make sure you have everything you need to transition from pediatric to adult care.
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REFERENCES:
1. Mayo Clinic. Sickle cell anemia. July 17, 2021. Accessed November 9, 2021. https://www.mayoclinic.org/diseases-conditions/sickle-cell-anemia/symptoms-causes/syc-20355876
2. Johns Hopkins Medicine. Sickle cell disease. Accessed November 9, 2021. https://www.hopkinsmedicine.org/health/conditions-and-diseases/sickle-cell-disease
3. Centers for Disease Control and Prevention. Data & statistics on sickle cell disease. Updated December 16, 2020. Accessed November 9, 2021. https://www.cdc.gov/ncbddd/sicklecell/data.html
4. Piel FB, Hay SI, Gupta S, Weatherall DJ, Williams TN. Global burden of sickle cell anaemia in children under five, 2010-2050: modelling based on demographics, excess mortality, and interventions. PLoS Med. 2013;10(7):e1001484.
5. Lebensburger JD, Bemrich-Stolz CJ, Howard TH. Barriers in transition from pediatrics to adult medicine in sickle cell anemia. J Blood Med. 2012;3:105-112.
6. Kanter J, Meier ER, Hankins JS, et al. Improving outcomes for patients with sickle cell disease in the United States: making the case for more resources, surveillance, and longitudinal data. JAMA Health Forum. 2021;2(10):e213467.
Transition TBH is a series of videos where SCD patients, doctors and social workers share their stories and tips for transition. We’ve handpicked our guests to make sure that you get something valuable out of this series.
Dr. Nirmish Shah, the Director of the SCD Transition Program at Duke University, talks about the importance of transition and shares his expert tips to ace it.
