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Search here for resources related to sickle cell transition.
You'll find everything from helpful videos and valuable information to forms and templates, resources, and more.
Living with SCD: Shaniya's story
Check out this YouTube series from St. Jude Children's Research Hospital. Shaniya strives to be a normal teenager, one not defined by her disease.
WATCH NOWSickle cell — Personal Experiences: Junior
Watch this video by Haemscreening where Junior gives his personal account of what it means to live with sickle cell, discussing both the physical and personal aspects of living with the disease.
WATCH NOWLiving with Sickle Cell Disease – Personal Stories
Listen to your peers talk about their own experiences living with sickle cell disease in this video by Rutgers Cancer Institute of New Jersey.
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Use this tool from hematology.org to see how ready you are for the transition from pediatric to adult SCD care.
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A valuable tool from gottransition.org to help you learn to navigate doctor appointments.
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A template from gottransition.org with everything you'll need to build your own emergency care plan.
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Download a comprehensive guide to SCD that includes vital disease information, transition tips, templates, and trackers.
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A guide to moving from pediatric care written by the experts at St. Jude Children's Research Hospital.
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Inspiring hematologist, Dr Nirmish Shah, talks about transition, with tips and advice plus education and research information on this lively podcast.
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An example of the type of transfer of care letter that your pediatrician will send to your new doctor when you transition to adult care.
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A sample transfer of care checklist and transfer package from gottransition.org.
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Watch this video on how advocacy can help you cope with SCD.
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SCDC is composed of multiple groups united to improve the outcomes of people living with SCD. Visit the site to:
• Access additional transition resources and more
• Access their monthly newsletter
An informative video series designed to answer all your questions about SCD.
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An online tool from hematologist.org to help you find a local hematologist.
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Learn how to manage your illness by making small changes to your lifestyle.
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How to make healthcare decisions; how to plan for what it looks like and how it can happen with the support you need.
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An example of the type of transfer of care letter that your pediatrician will send to your new doctor when you transition to adult care.
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Get Connected is a patient-powered registry connecting you to high-quality resources, networked information-sharing and more.
VISIT NOWTransition TBH is a series of videos where SCD patients, doctors and social workers share their stories and tips for transition. We’ve handpicked our guests to make sure that you get something valuable out of this series.
Dr. Nirmish Shah, the Director of the SCD Transition Program at Duke University, talks about the importance of transition and shares his expert tips to ace it.
