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As an adult patient, you are responsible for your healthcare. You have to stick up for yourself, raise your hand and ask questions when you don't understand. It takes some practice, but preparing for transition was your practice. You're now ready to take on the responsibility for your own care. A couple of things to remember:
You already know that taking good care of your health is important. Pain is the most common complication of SCD, and it's the number one reason that people with SCD go to the emergency room or hospital.
Every decision about your care — your treatment, medical tests, and health issues — comes with pluses and minuses. This is why shared decision-making is important. It's a partnership between you and your doctor. The idea is to incorporate your values and what you want to do along with your best available options. This way, you can know and can discuss your care, understand why it may be necessary, build a trusting relationship with your doctor, and feel good about participating in your own healthcare decision-making.
THRIVING IN ADULT CARE
Learn how to manage your illness by making small changes to your lifestyle.
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The National Resource Center for Supported Decision-Making website is dedicated to searching for supported decision-making by state.
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A tool created by the American College of Emergency Physicians to help emergency physicians better understand SCD and make sure people in the ER get the timely care they need. These care considerations may be helpful for ER doctors when sickle cell patients arrive for emergency treatment.
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Get helpful information on family planning options from the Sickle Cell Reproductive Health Education Directive.
VISIT NOWTransition TBH is a series of videos where SCD patients, doctors and social workers share their stories and tips for transition. We’ve handpicked our guests to make sure that you get something valuable out of this series.
Dr. Nirmish Shah, the Director of the SCD Transition Program at Duke University, talks about the importance of transition and shares his expert tips to ace it.
