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CONTINUEHelp us be even better by letting us know what we're missing. We appreciate you're calling it out.
SUBMITDon't miss this chance to stay up to date on the latest in sickle cell transition information and resources.
I may opt out at any time by clicking the “unsubscribe” link within any email I receive, by calling 1-877-744-2579, or by sending a letter containing my name, address(es), and email address(es) to Novo Nordisk, 800 Scudders Mill Road, Plainsboro, New Jersey 08536. To better understand how Novo Nordisk values your privacy and what other information may be collected from you while you use this service, please see our Privacy Notice. GET ME LOOPED INTransition is the process of getting ready to meet transition challenges head-on. We know that starting a conversation about transitioning from pediatric care to adult care is scary and full of unknowns. Start by raising your hand. Don't be afraid to ask questions.
Use the resources provided by this website. Pretty soon, you'll be ready to ace your transition.
WHAT IS TRANSITION?
BUILDING A BRIDGE TO ADULT CARE
PEDIATRIC VS ADULT CARE IN SCD
Transition is a word used to describe your graduation from SCD pediatric care to the adult care you'll need to continue as you get older. Just like at school, there is a lot to learn and it's going to take some work. But you can do it, and we're here to help.
Learning about SCD, how to take care of yourself, and how to self-manage your healthcare may seem daunting now, but it's your best shot to live the life you always dreamed of.
Don't worry, you won't do it alone. Your family or caregiver is going to have to learn how to gradually let you learn and grow your own healthcare independence as they learn to let you fly.
Use our resources to help prepare yourself for your own grad day.
Living with SCD: Shaniya's story
Check out this YouTube series from St. Jude Children's Research Hospital. Shaniya strives to be a normal teenager, one not defined by her disease.
WATCH NOWSickle cell—Personal Experiences: Junior
Watch this video by Haemscreening where Junior gives his personal account of what it means to live with sickle cell, discussing both the physical and personal aspects of living with the disease.
WATCH NOWLiving with SCD–Personal Stories
Listen to your peers talk about their own experiences living with sickle cell disease in this video by Rutgers Cancer Institute of New Jersey.
WATCH NOWPLANNING FOR ADULT CARE
Check out some samples from gottransition.org to see how ready you are for the transition from pediatric to adult SCD care.
VISIT NOWA valuable family toolkit to read or download from gottransition.org to help you learn to navigate doctor appointments.
VISIT NOWA template from gottransition.org with everything you'll need to work with your healthcare provider to build your own emergency care plan.
SEE SAMPLEAn informative video series designed to answer all your questions about SCD.
WATCH NOWA comprehensive guide to SCD that includes vital disease information, transition tips, templates, and trackers.
VISIT NOWA guide to moving from pediatric care written by the experts at St. Jude Children's Research Hospital.
VISIT NOWInspiring hematologist, Dr. Nirmish Shah, talks about transition, with tips and advice plus education and research information in this lively podcast.
VISIT NOWTransition TBH is a series of videos where SCD patients, doctors and social workers share their stories and tips for transition. We’ve handpicked our guests to make sure that you get something valuable out of this series.
Dr. Nirmish Shah, the Director of the SCD Transition Program at Duke University, talks about the importance of transition and shares his expert tips to ace it.